Tomorrow is Anh's fifth Birthday. We plan to celebrate the day with a big party, with lots of decorations, yummy food to eat, music, presents and a birthday cake with five candles shining bright.
Some of you might remember Anh who we posted about several months ago, a brave wee girl who had battled long and hard through sepsis and bacterial meningitis and come out the other side. She had previously been treated for hydrocephalus and had a shunt to drain the fluid from her head, but when the shunt became infected, it had to be removed.
Anh was recovering well, however, just as we could see a happy ending to her story, Anh's health began to deteriorate dramatically. Her muscles began to contract and no longer work the way they used to, she responded less to the world around her, and sadly, she lost her beautiful smile.
Further investigation showed that Anh had develop at least two large masses in her brain, with possibly more beginning to grow. The damage the masses caused, along with the damage from the meningitis was significant.
We have had numerous tests done - CT's scans and MRI's. We have sought second and third and forth opinions from all corners of the world, which we were so grateful to receive.
Last week, we met with the chief of neurosurgery at the biggest children's hospital in Ho Chi Minh City and received the devastating news that sadly there was no more that could be done for Anh.
While we wish things could be different for Anh, we can accept that life saving treatment is no longer an option, and feel at peace with the opinions we were given.
It's not that we have lost hope for Anh, our hope is still strong, it's just that the things we had hoped for her, have changed.
Now instead of hoping for Anh to recover, we hope that we can keep her life comfortable and pain free. We hope that we can give her as much living as possible, and cram her life full with happy moments. We will ensure that she spends as much time as possible doing the things we know she enjoys (like relaxing in a bath or listening to music). We will cuddle her, and read her stories, and massage her body.
We will not turn our back on Anh. We will walk with her on this journey.
Her nannies who love her dearly, are heartbroken at the news. As we support Anh, we will also do our best to support those who love her and ensure that they have every opportunity to celebrate Anh's life with her.
Happy Birthday, Sweet Girl