Sometimes you meet children and you realise, just by looking at that them, how hard life is for them, and the daily struggle that they have to endure. As you know, we have been getting to know Nha. For Nha, everyday is a battle. He struggles with constant breathing issues, pain, and severe muscle contractions of his fragile little body. Nha also has hydrocephalus which causes headaches and nausea.
We knew straight away that Nha would benefit from Palliative care. Palliative care is a holistic model of care, this involves taking into consideration not only physical and medical care but also thinking about the child’s emotional, social and spiritual health.
We have been loving spending time with Nha and getting to know him better.
Today he enjoyed sitting upright in a new bean bag, able to see the world from a different point of view, rather than just from his bedside. He has been enjoying some nice time in the sun (although only for short periods as it is very hot here in Vietnam, even for all of us!). Daily massages not only make his skin feel nice and soft, but also helps him relax his muscles. Nha has quite good hearing - he responds to his name, enjoys listening to our voices when we read him stories and sing songs and his face lights up when listening to all kinds of different music. Nha also has some vision - he smiles at the bright, colourful lights in the sensory room, and watches the pictures in his books we read.
While we have been getting to know Nha, and understand more about him and his needs, we have been starting to form a treatment plan, which is tailored specifically to him, in the hope of significantly improving his quality of life.
We will keep you posted on Nha's story.